blogging from the depths of autistic burnout • he/him • adult
300 posts
If you're a disabled young person, you've most likely been hit with the "pfft you think you're in pain now? Just wait til you're my age" bullshit from older people at least once. Everyone talks about how invalidating it is
But I haven't seen anybody mention how it's terrifying, too. Yes, I know health deteriorates with age. I know that old age is a disability unto itself. I know that the healthiest person alive will start getting aches and pains past the age of 40 and may even need mobility aids
I know all this stuff. And it always makes me think "yeah, if I can't walk without joint pain even while using mobility aids AT AGE 21, how painful will life be for me at the age where it gets painful for everyone?"
And it's hard not to feel like I'm doomed, y'know? Where most people get a period of health that they wish they appreciated more when they start to lose it, my starting point was a body that doesn't work properly and it's only gonna get worse from there. It's worse every fucking year.
TLDR stop telling disabled young people that their pain will only get worse to the point of being unimaginable as they age, WE FUCKING KNOW
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the thing is. knowing someone experiences hallucinations or trouble reading facial expressions or communication difficulties or any other symptom CAN help you to understand their behaviour and respond to it appropriately. but knowing someones diagnosis is never as helpful as it is to listen to them when they talk about how they can best be accommodated. and if “can you please speak slower” (for example) sounds like a ridiculous request from someone without a diagnosis and a reasonable one from someone with a diagnosis. well you’re the dick in that situation
money is such an underrated accessibility option.
like people want to think any disabled person who is after money is morally suspect some way, because they're not asking for "treatments" or "accommodations" like a lot of our issues can be fixed way more easily with money. can't drive? paying for a taxi is often one of the more accessible alternatives. can't cook? you can pay more to have prepared food delivered to you. food restrictions? that food straight up costs more money. can't clean? you can pay for someone to do that. house inaccessible? having (lots) of money can help with that, you get the gist.
having money won't make us abled. it also won't stop our symptoms from being distressing, painful, or debilitating. but there's a huge gap in experience between the average poor disabled person and someone who's actually wealthy. you can buy your way out of some of the difficult situations most disabled people are left to rot in. wanting money, needing money, asking for money is pretty natural when it's such a useful tool. why get so weird about disabled people wanting money like i'm pretty sure everyone wants money anyway
I've been looking into the job market and it seems like the only viable career path nowadays is becoming a demon swordsman.
°C stands for Correct temperature and °F stands for Freak temperature
wake up
deny yourself
4. phone in bed
sticker design for pride this year! 💞🏳️⚧️
Oh, and by the way, that Supreme Court ruling is where that Harry Potter money goes.
A friend and I were discussing what we're like when we're sick and we decided people usually fall into one of these five 'sick modes': *Everyone is probably multiple of these at different times depending on how sick they are and with what but we think most people have a mode they default to and become more often than the others*
Delicate Consumptive Victorian: you feel tragic and mournful but also beautiful in a sad way, you are in bed, sipping hot tea, others should quietly whisper about how you are too good for this world, too beautiful, too tragic... And bring you more tea
Sick Dog: you are curled up in a ball, you don't want anything, you don't need anything, but it would be nice if others could still ask you if you need anything
Sickly Child Emperor: you are dying and it's everyone else's problem, you need pillows, no! you need soup, no! You need absolute silence or you will not be the first one to die today
Plague Pit: you are curled up probably on the floor, no one touch you, no one look at you, this is between you and God and you already know He has no mercy left for you
Warrior General: you are not sick. You are in perfect health and you don't know why anyone would think otherwise. Illness is an enemy that can be intimidated and you must remain strong for your men! (You are going to pass out at the most inconvenient moment possible)
Do I understand the importance of child safety locks on medication caps? Yes.
Is it also a unique kinda fucked that the cap on my arthritis medication is VERY difficult to open? Also yes.
I’m a big fan of that post-laundry feeling when you’ve got all your A-list clothes back in the game.
without girl tummy we would be nothing. without girl tummy we would be sooo fucked.
who wants to punch me in the face until i spit blood
my collection
I've tasted employment. I've tasted unemployment. I suggest money should start growing on trees so I can buy whatever I want.
honestly theres always been something really wrong with me but whatever
i miss my gf i want my gf
good morning i feel like seven dollars
Hey, it’s ok to not be a “productive member of society.”
Some people are housebound. Bed bound. Some people physically can’t eat, shower, or use the toilet without the assistance of a caretaker. Some people don’t have the spoons to get out of bed in the morning, let alone work a 9-5 job in this capitalist hellhole.
You’re not lazy. You’re not less than.
And this is coming from a disabled person with chronic pain who can leave the house and walk (with some pain) without mobility aids.
You deserve to take up space. You deserve to cost money. You deserve to be here without feeling guilty just because you can’t give back in the traditional way.
You’re worth it, hun. 🫶🏼