blogging from the depths of autistic burnout • he/him • adult
300 posts
@tboys.club on instagram
people dont understand the boredom of being disabled.
i see a lot of people suggest to people to embrace boredom and creativity will come from it. that to improve your attention span and get your life back from the trap that is quick form media you need to be bored more.
but i dont think that is the case for many disabled people.
its not the case for me.
i am SO bored. EVERY day. i cannot do all the things i want to engage in. i cannot play games i cannot read i cannot do art i cannot bake. these things arent being stopped by a social media addiction, they are being stopped by my health.
and my attention span isnt struggling for the same reasons as many abled people. mine struggles because of my symptoms. my fatigue, my pain, they are distracting and fog my brain.
so disabled people, when youre looking for tips about how to improve your attention span, and engage in your hobbies more, keep in mind that the reason for your struggles may be completely different to the people who are sharing suggestions and tips on the topic.
Being chronically ill in your 20s is stupid you have to see your peers like “started a family🥰” “got married😍” “bought a house😇” “scored a promotion😋” meanwhile you’re fighting for your life to take a shower
guess whos at risk of homelessness again :)
im not gonna get into the weeds of it because i learned this at 6am and im running on very low sleep but please help me out if you can spare any amount of money right now
im still in the middle of getting my ID shit sorted and getting a diagnosis for my disability so im unable to work, and the people im living with are becoming considerably less patient and considerably more demanding of me.
please, if you can, i just need to stay afloat so that if/when i get booted out of here i have something to fall back on, but more than anything i just need to keep hold of the precarious situation im in for just a little longer while i get back on my feet.
thank you <3
People tend to think that when you're not able to do work because of chronic illness or disability (taking days off, not doing housework, being unemployed etc.) that you're just able to have fun and chill out like it's a holiday but that's so far from the truth.
The symptoms preventing you from working usually also prevent you from doing things you enjoy, or at least make doing those things significantly harder and less enjoyable.
It may seem like someone not working due to an illness has lots of free time, but that's not correct. The time is not free, the time is being used to rest and recover, which is really a task in its own right.
When I'm in a state where I can't go to school, I usually can't do much else either. I'm too fatigued, or in too much pain to make art or play games, too fatigued to read and actually comprehend what I've read. The only thing I can really do is lie down and scroll social media or watch TV, anything I don't need to actually think about or put physical effort into.
And it's not enjoyable. I'm still suffering from symptoms. I want to do other things, but I can't.
I would much rather feel healthy and work than be ill and stay home
(Disclaimer: this isn't to say that everyone with a chronic illness or disability is always suffering and unable to do anything or that disabled people can't have fun or that anyone who is able to participate in hobbies and fun things must be well enough to work, just that it's frustrating to see people think disabled people are "lucky to not have to work". Wanted to say this in case anyone gets the wrong idea or feels invalidated - you don't need to suffer greatly to be valid in your illness)
we love waking up in pain we love not sleeping because of pain yayy
The fact that experiencing pain long-term actually increases your sensitivity to pain instead of you getting used to it is absolute bullshit! I demand a refund
Doctors are like: ughhhhh. You're confusing. Come back if you die
one of the guys in the kitchen at work got called irritating and replied “I am not irritating. You just find me irritating. There are many people who love me.” I think we should all adopt his attitude
me: maybe i am not chronically ill, maybe people are right and i just need to push harder and stop being lazy
me going through a massive flare: fucking hell
chronic pain diagnoses are all like yeah we don't know what this is or why it happens. we also don't know how to treat it. good luck out there soldier
People with no childhood trauma is so confusing like what do you mean you cried to your mum and she helped you?
why is it so hard for able bodied people to believe that doctors are sometimes just incompetent? you realize doctors are people, right? people that can be bad at their job. that happens sometimes. they don't know everything because there's a piece of paper on their wall that says they're smart, actually. they can sometimes be wrong, actually. they can sometimes cut corners and take the easy way out, actually. they can sometimes hate their job and make that their patients problem, actually. doctors aren't all saints who do everything right the first time. please stop invalidating disabled people when they complain about their terrible treatment at the hands of medical professionals. please stop putting the feelings of doctors over the lives of their patients.
ive been trying to let evil into my life
"came back wrong" what about Came Back Afraid. You used to be brave. Too brave maybe, defying the odds at every turn, a fighter, cocky, playing with fire, first to throw yourself at the enemy. Until one day it all caught up to you. You came back, somehow, but now you know all too intimately how it feels to lose, to die, to be destroyed. Now you flinch and freeze and cower at the slightest provocation. Who even are you now if you can't be brave? The grave may have let you go, but the mortal fear still grips you tighter than ever.
Where's my Breakfast?
Oil on Panel 30x30 cm
Artist: Daniel Arthur
Video captions: And stop trying to show your ex what they missed out on! Stop trying to teach your family a lesson for not believing in you! Stop trying to shit on your haters! Do it for you! Do it because you deserve it! Do it for YOU! Water your dreams with love! Don’t put no hate and resentment, and try to — “oh Imma fucking show them, Imma show” — FUCK THEM! Fuck them, do it for you! They don’t matter! They NEVER mattered.
worst part about getting angry is how much it makes you want to be mean
choosing to allocate spoons to hanging out and having a good time at the cost of perfectly completing all your work is not a failing it is in fact an act of survival. “too sick to work = too sick to play” is in fact ableist bullshit that you don’t have to buy into. and the fact that leisure time is treated like a privilege is a fucking travesty
Does anyone else with chronic fatigue feel like you can barely talk to people anymore?? I don't even mean like from a "I'm too exhausted to interact with people" standpoint, I mean like you can barely think of things to keep a conversation moving and end up making random sounds or going silent for super long periods of time to the point where it's unsettling and makes people distance themselves... idk, it almost feels like the worse my fatigue gets, the more lonelier I get because I can barely entertain a conversation and talk