Latest Posts by bitchthingie - Page 10

okay but why are so many medical professionals focused solely on getting their patients back to their jobs and not actually helping the patient feel better. like you will be literally unable to digest food or eat or do anything and they'll be like "that's not good we gotta get you BACK to WORK!!!!!!!!" and so they drag their heels and take up a bunch of time and give you treatments that don't work or take forever to give you ones that do and when you tell them. hey i still don't feel good the first thing is "BUT YOUR JOB!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!"

fuck my stupid job. i'm dying. i'm a person not a walking job. help me. a lot of medical professionals will refuse to do their job and instead lecture you about being unable to go to your job instead. unreal.

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25 ways to be a little more punk in 2025

Cut fast fashion - buy used, learn to mend and/or make your own clothes, buy fewer clothes less often so you can save up for ethically made quality

Cancel subscriptions - relearn how to pirate media, spend $10/month buying a digital album from a small artist instead of on Spotify, stream on free services since the paid ones make you watch ads anyway

Green your community - there's lots of ways to do this, like seedbombing or joining a community garden or organizing neighborhood trash pickups

Be kind - stop to give directions, check on stopped cars, smile at kids, let people cut you in line, offer to get stuff off the high shelf, hold the door, ask people if they're okay

Intervene - learn bystander intervention techniques and be prepared to use them, even if it feels awkward

Get closer to your food - grow it yourself, can and preserve it, buy from a farmstand, learn where it's from, go fishing, make it from scratch, learn a new ingredient

Use opensource software - try LibreOffice, try Reaper, learn Linux, use a free Photoshop clone. The next time an app tries to force you to pay, look to see if there's an opensource alternative

Make less trash - start a compost, be mindful of packaging, find another use for that plastic, make it a challenge for yourself!

Get involved in local politics - show up at meetings for city council, the zoning commission, the park district, school boards; fight the NIMBYs that always show up and force them to focus on the things impacting the most vulnerable folks in your community

DIY > fashion - shake off the obsession with pristine presentation that you've been taught! Cut your own hair, use homemade cosmetics, exchange mani/pedis with friends, make your own jewelry, duct tape those broken headphones!

Ditch Google - Chromium browsers (which is almost all of them) are now bloated spyware, and Google search sucks now, so why not finally make the jump to Firefox and another search like DuckDuckGo? Or put the Wikipedia app on your phone and look things up there?

Forage - learn about local edible plants and how to safely and sustainably harvest them or go find fruit trees and such accessible to the public.

Volunteer - every week tutoring at the library or once a month at the humane society or twice a year serving food at the soup kitchen, you can find something that matches your availability

Help your neighbors - which means you have to meet them first and find out how you can help (including your unhoused neighbors), like elderly or disabled folks that might need help with yardwork or who that escape artist dog belongs to or whether the police have been hassling people sleeping rough

Fix stuff - the next time something breaks (a small appliance, an electronic, a piece of furniture, etc.), see if you can figure out what's wrong with it, if there are tutorials on fixing it, or if you can order a replacement part from the manufacturer instead of trashing the whole thing

Mix up your transit - find out what's walkable, try biking instead of driving, try public transit and complain to the city if it sucks, take a train instead of a plane, start a carpool at work

Engage in the arts - go see a local play, check out an art gallery or a small museum, buy art from the farmer's market

Go to the library - to check out a book or a movie or a CD, to use the computers or the printer, to find out if they have other weird rentals like a seed library or luggage, to use meeting space, to file your taxes, to take a class, to ask question

Listen local - see what's happening at local music venues or other events where local musicians will be performing, stop for buskers, find a favorite artist, and support them

Buy local - it's less convenient than online shopping or going to a big box store that sells everything, but try buying what you can from small local shops in your area

Become unmarketable - there are a lot of ways you can disrupt your online marketing surveillance, including buying less, using decoy emails, deleting or removing permissions from apps that spy on you, checking your privacy settings, not clicking advertising links, and...

Use cash - go to the bank and take out cash instead of using your credit card or e-payment for everything! It's better on small businesses and it's untraceable

Give what you can - as capitalism churns on, normal shmucks have less and less, so think about what you can give (time, money, skills, space, stuff) and how it will make the most impact

Talk about wages - with your coworkers, with your friends, while unionizing! Stop thinking about wages as a measure of your worth and talk about whether or not the bosses are paying fairly for the labor they receive

Think about wealthflow - there are a thousand little mechanisms that corporations and billionaires use to capture wealth from the lower class: fees for transactions, interest, vendor platforms, subscriptions, and more. Start thinking about where your money goes, how and where it's getting captured and removed from our class, and where you have the ability to cut off the flow and pass cash directly to your fellow working class people

The mind numbing anger of chronic fatigue is getting irritable because you're so fucking tired but you really feel like you SHOULDNT BE.

You SHOULD be able to sit at a desk and do work. You SHOULD be able to just watch a freaking YouTube video. You SHOULD be able to just eat fucking lunch.

But you can't. Because your eyes are closing and it's like temporary death is taking you.

I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)

How to Get On

How to Get On

How to have a great, disabled life.

It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:

How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.

Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."

How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills

How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud

Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides

Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance

Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!

There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.

Please boost!

My controversial opinion is that I think chronically ill people should be able to fight one doctor a year

Sorry I Spent all mY spoons this week already and it's fucking Tuesday. We're heading to the knives

why cant i get on Sleepy Eepy Disease leave

aauuauauuuhahauaauhahHh euehhgah gweyeyhhhhhahhh nnnhnmnggjannm

I've been disabled for almost 29 years. Here's what I've learned.

Tablets sink and capsules float. Separate out your tablets and capsules when you go to take them. Tip your head down when taking capsules and up when taking tablets. Liquigels don't matter, they kinda stay in the middle of whatever liquid is in your mouth.

If your pill tastes bad, coat it with a bit of butter or margarine. I learned this from my mom, who learned it from a pharmacist.

Being in pain every day isn't normal. Average people experience pain during exceptional moments, like when they stub their toe or jam their finger in a door, not when they sit cross-legged.

Make a medical binder. Make multiple medical binders. I have a small one that comes with me to appointments and two big ones that stay at home, one with old stuff and one with more recent stuff.

Find your icons. Some of mine include Daya Betty (drag queen with diabetes), Stef Sanjati (influencer with Waardenburg syndrome and ADHD), and Hank Green (guy with ulcerative colitis who... does a bunch of stuff). They don't have to be disabled in the same way as you. They don't even have to be real people. Put their pictures up somewhere if you want; I've been meaning to decorate my medical binders with pictures of my icons.

Take a bin, box, bag, basket, whatever and fill it with items to cope with. This can be stuff for mentally coping like colouring books or play clay or stuff for physically coping like pain medicine or physio tape.

Decorate your shit! My cane for at home has a plushie backpack clip hanging from the end of the handle and my cane for going places is covered in stickers. All of my medical binders have fun scrapbooking paper on the outside. Sometimes, I put stickers and washi tape on my inhalers and pill bottles. I used my Cricut to decorate my coping bin with quotes from my icons, like "I've seen enough of Ba Sing Se" and "I need you to be angrier with that bell".

If a flare-up is making you unable to eat or keep food down, consider going to the ER. A pharmacist once told me that since my eye flares can make me so nauseous that I cannot eat, then I need to go to the hospital when that happens.

Cola works wonders for nausea. I have mini cans of Diet Pepsi in my coping bin.

Shortbread is one of the only things I can eat when nauseous. Giant Tiger sells individually-wrapped servings of shortbread around Christmas or the British import store sells them year-round. I also keep these in my coping bin.

Unless it violates a pain contract or something, don't be afraid to go behind your doctor's back to get something they are refusing you. I got my cardiologist referral by getting in with a different NP at my primary care clinic than who I usually saw. I switched from Seroquel to Abilify by visiting a walk-in.

If you have a condition affecting your abdomen in some way (GI issues, reproductive problems, y'know) then invest in track pants that are too big. I bought some for my laparoscopy over a year ago and they've been handy for pelvic pain days, too. I've also heard loose pants are good for after colonoscopies.

Do whatever works, even if it's weird. I've sat on the floor of the Eaton Centre to take my pills. I've shoved heating pads down my front waistband to reach my uterus.

High-top Converse are good for weak ankles. I almost exclusively wear them.

You can reuse your pill bottles for stuff. I use my jumbo ones to store makeup sponges and my long skinny ones to hold a travel-size amount of Q-Tips.

Just because your diagnostics come back with nothing, it doesn't mean nothing is wrong. Maybe you were checking the wrong thing, or the diagnostic tool wasn't sensitive enough. I have bradycardia episodes even though multiple cardiac tests caught nothing. I probably have endometriosis even though my gynecologist didn't see anything.

You can bring your comfort item to appointments, and it's generally a green flag when someone talks to you about it. I brought a Squishmallow turkey (named Ulana) to my laparoscopy and they had her wearing my mask when I woke up. I brought a Build-A-Bear cat (named Blinx) to another procedure and a nurse told me that everyone in the hall on the way to the procedure room saw him and were talking about how cute he was. Both of those ended up being positive experiences and every person who talked to me about my plushies was nice to me. If you don't feel comfortable having it visible to your provider during the appointment, you can hide it in your bag and just know it's there, or if you're in a video appointment, you can hold it below frame in your lap.

Get a small bucket, fill it with stuff, and stick it in your bed (if you have room for it). I filled a bucket with Ensure, juice boxes, oatmeal bars, lotion, my rescue inhaler, etc. in October 2023 in anticipation of my laparoscopy and I still have it in my bed as of January 2025.

If your disability impacts your impulse control (e.g. ADHD, bipolar disorder), you should consider setting limits around your spending -- no more than X dollars at a time, nothing online unless it's absolutely necessary, and so on. Or, run these purchases by someone you trust before committing to them; I use my BFF groupchat to help talk sense into myself when I buy stuff.

Feel free to add on what you've learned about disability!

Me lying down: I feel pretty much fine. What am I doing lying around? I should get up and do something. Or at least sit upright, damn.

Me when I’m upright: oh, Jesus. Oh, damn. Oh, RIGHT—this is why I was lying down.

Uh-oh, coming down with a case of “what-if-a-bunch-of-other-people-experience-these-symptoms-as-bad-as-I-do-but-they-suck-it-up-and-work-anyway-and-I’m-just-being-a-little-bitch”-itis

Chiitan 😭

THIS!!

THIS IS AN AMAZING WAY TO THINK OF CHRONIC PAIN

"everyone should care about accessibility because most people will become disabled at some point in their life" is a logical argument and I understand its popularity

however, everyone should care about accessibility because disabled people are fellow human beings living in the same society as you who deserve the same rights as you

thank you good night

Something I think people who don’t live with chronic illness don’t understand is that there is a big difference between resting to get better and resting to avoid getting worse.

what is it with able bodied people saying “get well soon” after you say that you’re chronically ill?? like? i am not gonna? and i once literally responded with “i’m not gonna, it’s chronic, as in permanent.” and they went like “oh well, hope you get better!” like bro 💀

I would like to see more people talk about how jobs treat disabled employees.

I used to prep, wash dishes, and cook at mellow mushroom. I had chronic pain that wasn't NEARLY as bad as it is today, but it was still very debilitating. I told my employer "i cannot stand more than 4 to 6 hours. I CANNOT do shifts longer than this due to my illness." And even though i made my boundaries VERY clear, everyday i worked it was 8 hours at the least and 10 or 12 at the most. I would go up to my manager and say "look i really need to leave, my shift is over, my chronic pain is killing me." And he'd say "we really need to here, you HAVE to push through." And so i did, and after one, ONE month of that job my crps got incredibly worse to the point where i could no longer walk my dog around the block which was .5 miles. I quit, and that was FOUR years ago, and ever since that day I HAVE BEEN BEDRIDDEN AND HAVE TO USE A WHEELCHAIR. It is my biggest regret in life.

My best friend who has seen my whole journey has recently developed undiagnosed chronic pain, and she is in the EXACT same scenario i was 4 years ago. Busting her ass at a pizza place with extreme pain that hurts her so much she tells me "im in so much pain i don't even feel like a person." She doesn't feel LUCID. And her manager and coworkers are saying the same thing "if you don't help us you will let us down, we'll be in the shit."

That job thats hurting you isn't fucking worth it. I promise you no money is worth losing all your physical abilities and never getting them back. Your coworkers and boss do not give a shit about you, so don't you dare suffer for them. They will never understand your struggle and they will never try. They truly think being understaffed is worse than whatever pain you experience. They would rather you permanently damage yourself than inconvenience them. FUCK THEM. DON'T FUCKING DO IT!

life when you aren’t romantically attracted to people

Well obviously I can’t have chronic fatigue, that’s a real problem for real disabled people that’s diagnosed by doctors probably. Clearly I just have some sort of perpetual exhaustion issue, that is also almost certainly my fault somehow

a neurodivergent spoonie's guide to having teeth

LEGAL DISCLAIMER: This blog is for educational and informational purposes only. This does not constitute providing medical advice or professional services. Information on this blog should NOT be used for diagnostics or treating a health problem. Always seek the advice of your doctor or other qualified dental health provider regarding diagnosis and treatment of a dental condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this blog.

this is as close to a comprehensive guide to dental care as i can make. i'm autistic/adhd/ocd/chronically ill and i've worked in dentistry for several years. i want to use my knowledge to help other spoonies struggling with dental care. i know it can be really hard, but dental health is so important and we deserve healthy mouths just as much as NT/abled folks!!

being neurodivergent and/or chronically ill can make personal care tasks incredibly difficult. so many of us struggle with washing our hair, getting dressed, and cleaning up. but remember: hair will grow back if it's damaged, clothes can be washed when they smell bad, and a dirty house can be made clean again, but we only have one set of teeth to last our whole lives. those pearly whites are worth taking care of!

these tips are based on feedback/questions i've gotten from ND folks on tumblr and facebook, patients at the practices i've worked in, and my own experience. standard disclaimer that this information will not be applicable to every single person, just take what works for you and pass the rest on to the next person. i am also a resource for further information. this is going to be pretty rapidfire, so if you want me to elaborate on anything or have a question about something i didn't address in this post, my askbox is open and anon is enabled. i love talking about teeth and i would love to help my fellow spoonies take care of theirs!

without further ado:

on homecare:

any dental professional will tell you that having good oral health starts at home. taking care of our teeth can be incredibly difficult when our spoons are low, so i've made a list of strategies to make it easier.

best practice is to brush twice per day and floss once per day. this may not be realistic for those of us who struggle with habits and/or executive dysfunction. if you can only remember to brush once per day, brushing at night is the most important.

the ideal order of operations is floss, tongue scrape, mouthwash, then brush. but flossing and brushing are the most important steps in the routine.

brushing your teeth in the shower is perfectly acceptable! personally, i keep one toothbrush in the shower and one on the sink to maximize my opportunities to brush.

if you don't have the energy to floss, a toothbrush with fine bristles like this one is a good compromise.

you should replace your toothbrush or electric brush head every three months. the bristles get worn down and become less effective over time. set a recurring event on your phone calendar to keep track!

if you find it difficult to brush your teeth at all, use a washcloth to gently scrub your teeth until you feel that you've gotten the film off, then use a fluoride mouthwash. they also make single-use waterless toothbrushes like these. i like to keep them on my nightstand for really bad days when i can't even get myself to the bathroom to brush.

this is an excellent guide on proper brushing technique.

an electric toothbrush is an excellent investment. even a cheap one at the grocery store is a huge step above a manual toothbrush. personally, i love quip because they're more affordable than brands like sonicare, and they send you replacement brush heads on a regular basis.

be careful not to brush too aggressively; your brush should glide gently over the surface of your teeth. if you feel a lot of friction, lighten your pressure. brushing too hard can wear away your enamel and damage your gums.

if the mint flavor in toothpaste triggers sensory discomfort, try kids' toothpaste! it has less fluoride than adult toothpaste, but it's still miles better than not brushing at all.

mouthwash is used to neutralize bacteria on soft tissues. use an antibacterial or fluoride mouthwash for healthy gums and strong enamel. listerine original is the best, but they have lots of varieties including gum health, alcohol-free, and many more.

whenever possible, use a straw to drink soda or coffee so it doesn't touch your teeth, and rinse with water after you drink it. try to not sip sugary drinks throughout the day. switching to sugar-free beverages will make a huge difference in cavity prevention.

if you have any gaps between teeth, an interdental brush will help you keep the areas between those teeth clean and prevent decay.

i like to keep a package of floss picks in the living room so that i can floss while i watch tv. the best time to floss is right before you brush your teeth, but there is no bad time to floss.

this video shows proper flossing technique. this video shows proper technique when using floss picks.

dry mouth is a lesser-known cause of cavities. saliva protects your teeth from decay, so when you don't produce enough of it, you're at higher risk. dry mouth rinses like this one are a great defense against this!

remember, something is always better than nothing. brushing once a day is better than not brushing at all. flossing once a week is better than not flossing at all. be gentle with yourself.

on finding a dental provider:

finding a new provider and making an appointment can be confusing and overwhelming when we have low executive function. there are some ways to make it just a bit easier.

if you have insurance, they likely have a tool on their website to find providers in your network. you can usually find this information on your insurance card. this should narrow down your options considerably.

the absolute best thing you can do is find a supportive provider who you can open up to about your struggles with dental care. look up your options on google reviews and ctrl+f "anxiety". if these anxious patients have a good experience, it's more likely you will too.

you can ask for recommendations in your local community's facebook group or subreddit, both of which offer anonymity. specify your needs in your post. chances are, other people in your community have similar needs, and can help you find the right people to meet those needs.

a few people expressed that they avoid the dentist because of a family history of poor dental health, and the fear of having the same problems. i want to assure you that, while dental health does have a genetic component, it is far from the only factor. the most effective thing you can do to prevent dental issues is to go in for regular maintenance. prevention is the gold standard in dentistry.

a lot of us struggle with making phone calls. luckily, it's becoming increasingly common for practices to allow online booking and communication via email. look for these options on a practice's website!

if fear or executive dysfunction is getting in your way, phone a friend for help. sometimes things that are hard for us aren't as difficult for others. maybe your roommate can call the office for you. maybe your sister can drive you to your appointment. don't be afraid to lean on your village.

in the dental office:

a big issue with dental offices is that they are basically a sensory nightmare. while it's never going to be fully comfortable, there are some things you can do to make your experience more tolerable.

be open and honest with your dental providers. if you smoke, tell them (this includes cannabis; they cannot report you for cannabis use even if you're not in a legal state). if you've never flossed before, tell them. their job is to help you, not shame you. if a provider makes you feel ashamed, stop seeing them.

so many people have mentioned they're embarrassed about their anxiety and sensory struggles in the dental office. let me assure you that your providers see so many anxious patients every single day. they're used to it, and they're not going to be judging you. to help illustrate this, i'm going to cite some examples of patients from my practice and the ways we help them manage their anxiety and sensory struggles.

probably the most common concern among patients in our practice is a fear of the numbing injection. i have a pretty severe phobia of needles myself. our dental assistants are well-trained to manage this fear. they distract patients during the shot, and help them breathe through the anxiety before and after. this training is part of the dental assistant certification process, so it should be relatively universal.

you can bring a comfort item with you. be it a stuffed animal, a video game, a book, even a comforting person who can sit with you.

you know that lead vest that they lay on you when they take xrays? you can ask to wear that during your whole visit. it acts like a weighted blanket and it feels so nice and comforting. we have a few patients who do this at my practice.

headphones or earplugs are a lifesaver to drown out all the horrible sounds. i literally refuse to get a cleaning without them. there's even a hygienist at my practice that wears earplugs while she's working because the sound of the cavitron bothers her. there's no shame in it whatsoever.

if your practice offers it, nitrous oxide is a great option for anxiety. most people know it as laughing gas. it puts you in a dreamlike state so you're more or less unaware of what's going on. no joke, this stuff had me so relaxed i fully fell asleep while getting a root canal. you can even get it when you get your cleanings!

a lot of our patients request a specific doctor, dental assistant, and hygienist for their appointments. this is incredibly common. if you find someone that makes you feel safe, let the scheduling staff know that you'd like to see that person each time you come in.

dress comfy. there's no dress code for the dental office; show up in sweatpants if you want.

remember at the end of the day, your dental providers are not there to judge you if you don't have perfect homecare. their ultimate goal is to get your mouth healthy no matter your starting place. i can't speak for every dentist obviously, but the dentists at my practice are incredibly patient and sympathetic and have nothing but their patients' best interests in mind.

again: if you feel disrespected or shamed by your provider, find a new one who will be compassionate with you. you don't owe any provider loyalty, even if you've been going there since you were a toddler.

on recovery:

one of the hardest things to do is build healthy habits when you're starting from an unhealthy place. if you're dealing with poor dental health, getting your mouth healthy again can seem impossibly daunting. i'm here to tell you it is possible, but it takes work.

it starts in the dental chair. your provider should communicate what treatment is the highest priority, and they will start there. rather than overwhelming yourself with the big picture, focus your attention on the next step.

things like root canals, crowns, and periodontal treatment can be very expensive. unfortunately, in the united states at least, dental insurance is quite lacking across the board. if expenses are a concern, dental schools are a great option for having treatment done at a low cost. keep in mind that treatment will often take significantly longer due to the dentists being supervised students.

my job in the practice is treatment coordinator. this means that i work one-on-one with my patients to help them understand their treatment plans and make the process as easy and comfortable as possible for them. ask your practice if they have a treatment coordinator. if they don't, suggest that they create the role, and reach out to me here. my dream is to be able to help people manage their oral health. i will be a resource to anyone that doesn't have a treatment coordinator available to help you navigate your course of treatment.

any restorative work (fillings, crowns, etc.) that you have done has to be cared for, just like virgin teeth. cavities can still form underneath fillings and crowns. make sure you are keeping your regular hygiene appointments, and use the above strategies to effectively care for your restorations at home.

if you have a lot of treatment to work through, it may take a long time. we have patients that have spent 2-3 years working through their treatment plans with us. this can feel daunting and depressing. but remember, it's not forever. the majority of these patients who continue to see us for regular visits only have 1-2 new cavities at a time, if anything, once we finish their initial work.

there are very few dental problems that cannot be fixed. cavities can be filled, crowns placed, root canals done to save teeth that are severely decayed. gum disease cannot be cured, but it can be very effectively managed. i see patients all the time that come in expecting to lose all their teeth and need dentures, only to be relieved when we tell them only a few teeth are truly not restorable.

my job revolves around patient education, and it's always shocking to me how little we are taught about caring for our teeth. please be kind to yourselves; it is NOT your fault for not knowing or having the resources to take care of them yourself. once again, my askbox is open and anon is enabled if you have more questions after reading this guide.

Signs of Autistic Burnout

Neurodivergent_lou

Kinda fucked up that we all coo and sympathize with "former gifted kids" but never talk about the students who had to stay late after school or over the summer for remedial classes/clubs, who struggled to get above a C, who were given up on or punished. Who tried so hard to understand or just couldn't. Who were grouped with the "stupid kids" (a classmate called us that in remedial math btw)

Autistic kids and adhders who can't relate to their gifted peers and are constantly alienated by them. Kids who struggled in school due to dealing with a chronic or mental illness or physical/learning/developmental disability. Those of us who have had to drop out of highschool or college. Kids who worked so hard and wanted to be seen as smart, but never were. Who watched as their peers seem to fly by them in school, while they were left behind. Who were bullied and put down by those in the gifted and honors classes. Whose confidence was absolutely destroyed by education.

I love you all and I'm so sorry the school system failed you. I'm sorry you weren't properly accommodated and given the education you deserved. I'm sorry people put you down for something that they never had to fight for.

one of the most challenging skills i've had to learn as an adult is the art of figuring out whether i'm proportionally annoyed with someone or just tired and overstimulated and looking for reasons to be pissed off

If you feel the need to gift your chronically ill friends things for whatever reason, here is my "starter pack/gift guide"

A pack of their favorite gateorade flavor, great for hydration, tastes good, easy and quick. Body armor, prime, etc are also good options if they dont like gateorade

Some of their favorite powder electrolytes. Liquid IV and drip drop are some good options. There are also the generic brand electrolyte packets at Walmart, I think they taste good. There is also bouy if they like the squeezy ones, i dont but if they do bouy has an unflavored one as well as like 30 different options

Kt tape. Regular, extreme strength, cooling, heating, literally any type of kt tape. They can probably find a use for it. Most ((not all but most)) chronically ill people, at least the ones I know, suffer from some type of joint issues and kt tape is a life saver. On this vein, I would stray away from braces unless you know what joints/muscles specifically give them the most trouble, kt tape is a bit more versatile

Compression socks, there are cute ones on Amazon, Walmart, many small business sell some nice ones. I would go for a higher compression, or at least upwards of 15 mmhg, for the best chance of them being worth it

Temperature devices, im putting these in the same bullet point bc it felt unnecessary to put ice packs and heating pads in different points. Ice packs are really nice for swelling and heating pads are really good for pain. Both are a good option ALWAYS. I will say, the reusable ice packs give you a better bang for your buck than the single use crack and use ones.

Their comfort foods. A bit of an ed tw for this bullet point, but i have noticed quite a few of my fellow chronic illness sufferers deal with an ed, and while it isnt all of us, those who do probably find it a bit extra hard to eat on rough days. So comfort foods/snacks

If they have to take their blood sugar for things, lancets. They usually come in like 100 packs for really cheap, like under 5 bucks cheap. Just check to see the brand of their lancing pen before you buy them tho

Batteries, it sounds weird but stay with me. Do you know how many medical devices I have that require batteries?? MANY. My hr monitor, my glucose monitor, my blood pressure monitor- like bro, a pack of triple a batteries will mean more than you think trust

A weighted blanket/stuffie. Stuffies are cute and easy to carry around, blankets are nice when you need some extra weight

If they have a service animal, an accessory for their vest/leash/collar could be nice

One of those reacher things that grab things for you. I want one of those. When your stuck in bed, cant move, ill, in pain and suddenly drop your mother fucking phone cord off the side of your bed and now you have to MOVE and grab it- 10/10 worst experience. One of those grabby things would be amazing

A migraine cap. I got mine from target but I have seen them at Walmart, on Amazon, weirdly one on depop, some on shein, some at places like tj maxx, etc. Migraine caps are especially wonderful for those days where your shut in your room, blinds drawn, fans off, three ice packs on you in constant rotation, barely mobile and for some gods forsaken reason your blinds wont close all the way so the light keeps catching your eyes and making you want to lose your ever loving shit bc you cant move to fuck with them. And more normal experiences Im sure lmao

If your short on funds, just being there with them, listening to them, watching a movie, body doubling so they can get some help with chores, running errands with them, literally anything so they remember their a human person with human feelings that you love and care abt. Who knows, it might help you feel better too

More than anything, listening to what they want and need is a bigger gift than most think